参考文献/References:
[1] Suzuki K, Suzuki Y. Globoid cell leucodystrophy (Krabbe's disease): deficiency of galactocerebroside beta-galactosidase. Proc Natl Acad Sci USA, 1970, 66(2): 302-329.
[2] Beltran-Quintero ML, Bascou NA, Poe MD, et al. Early progression of Krabbe disease in patients with symptom onset between 0 and 5 months. Orphanet J Rare Dis, 2019,14(1):46.
[3] Allewelt H, Taskindoust M, Troy J, et al. Long-Term Functional Outcomes after Hematopoietic Stem Cell Transplant for Early Infantile Krabbe Disease. Biol Blood Marrow Transplant, 2018,24 (11):2233-2238.
[4] Langan TJ,Barcykowski AL,Dare J, et al.Evidence for improved survival in postsymptomatic stem cell-transplanted patients with Krabbe's disease.J Neurosci Res,2016,94(11):1189-1194.
[5] Baumgartner A, Zueger N, Bargetzi A, et al. Association of Nutritional Parameters with Clinical Outcomes in Patients with Acute Myeloid Leukemia Undergoing Haematopoietic Stem Cell Transplantation. Ann Nutr Metab, 2016,69(2):89-98.
[6] Taggart C, Neumann N, Alonso PB, et al. Comparing a Neutropenic Diet to a Food Safety-Based Diet in Pediatric Patients Undergoing Hematopoietic Stem Cell Transplantation.Biol Blood Marrow Transplant, 2019,25(7):1382-1386.
[7] Baumgartner A, Hoskin K, Schuetz P. Optimization of nutrition during allogeneic hematologic stem cell transplantation. Curr Opin Clin Nutr Metab Care, 2018,21(3):152-158.
[8] Baumgartner A, Bargetzi M, Bargetzi A, et al. Nutritional support practices in hematopoietic stem cell transplantation centers: A nationwide comparison. Nutrition, 2017,35:43-50.
[9] Moody K. Neutropenic Dietary Restrictions for Hematopoietic Stem Cell Patients: Time for a Change. Biol Blood Marrow Transplant, 2019,25(7):e223-223e225.
[10] Lewandowski CG, Daudt LE, Jochims A, et al. Nutritional aspects in allogeneic hematopoietic stem cell transplantation in children and adolescents in a tertiary hospital. Nutr Hosp, 2019,36 (1):20-24.
[11] Garios RS, Oliveira PM, Aguiar AS, et al. Caloric and protein intake in different periods of hospitalization of patients undergoing hematopoietic stem cell transplantation. Hematol Transfus Cell Ther, 2018,40(4):332-338.
[12] Muscaritoli M, Grieco G, Capria S, et al. Nutritional and metabolic support in patients undergoing bone marrow transplantation. Am J Clin Nutr, 2002,75(2):183-190.
[13] Fuji S, Mori T, Khattry N, et al. Severe weight loss in 3 months after allogeneic hematopoietic SCT was associated with an increased risk of subsequent non-relapse mortality. Bone Marrow Transplant, 2015,50(1):100-105.
[14] Bell KL, Samson-Fang L. Nutritional management of children with cerebral palsy. Eur J Clin Nutr, 2013,67 Suppl 2:S13-16.
[15] Papadopoulou A, Williams MD, Darbyshire PJ, et al. Nutritional support in children undergoing bone marrow transplantation. Clin Nutr, 1998,17(2):57-63.
[16] 费 俊, 潘莉雅, 朱晨临, 等 . 骨髓移植患儿移植前后饮食摄入的改变 .中华临床营养杂志,2014,22(2):67-73.
[17] Sacks N, Henry D, Bunger K, et al. Oncology, hematopoietic, gastrointestinal supportive care medications, and survivorship. American Society for Parenteral and Enteral Nutrition (ASPEN),2015.
[18] Charuhas P, Gautier S. Parenteral nutrition in pediatric oncology.Springer, 1997.
[19] Aisen ML, Kerkovich D, Mast J, et al. Cerebral palsy: clinical care and neurological rehabilitation. Lancet Neurol, 2011, 10(9):844-852.
[20] 高恒妙,钱素云 .危重症儿童肠内营养时应关注的重点问题 .肠外与肠内营养, 2020,27(6):321-324.
[21] Arvedson JC. Assessment of pediatric dysphagia and feeding disorders: clinical and instrumental approaches. Dev Disabil Res Rev, 2008,14(2):118-127.
[22] Arvedson JC. Feeding children with cerebral palsy and swallowing difficulties. Eur J Clin Nutr, 2013,67 Suppl 2:S9-S12.